We went to meet another family with a child that has the same genetic condition as Lucie today. MEF2C haploinsufficiency syndrome is extremely rare, possibly as few as 50 people are known, and to have someone just down the road from us is amazing.
We went to meet another family with a child that has the same genetic condition as Lucie today. MEF2C haploinsufficiency syndrome is extremely rare, possibly as few as 50 people are known, and to have someone just down the road from us is amazing.